March 29th, 2010 . by admin
I’ve been showing all of the symptoms of chronic fatigue syndromes for around 5 years and I was a very healthy child for the most part before this. The only major illness I had was when I was born I had beta strep and almost died from it. The doctors told my parents that it could effect me some time later in life in some way or it may never effect me again. I was wondering if there was any type of correlation between these two things?
I don’t believe anyone has come up with a definitive reason for chronic fatigue syndrome although there are a lot of theories about what causes it. Your theory sounds as plausible as any.
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March 22nd, 2010 . by admin
My wife was recently diagnosed with Epstein-Barr virus. this virus causes mononucleosis, chronic fatigue and even spleen rupture. I can find support groups for her, but I can’t find one to help me take care of her. any suggestions?
Contact Chronic Fatigue and Immune Dysfunction Syndrome Association of America. Please see their website given below.
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March 15th, 2010 . by admin
I was diagnosed with Chronic Fatigue Syndrome in 1990. Then several years later they tell me that I have Fibromalgia. They same it is one in the same illness but I do not agree. My fatigue and muscle pain are totally different. Do you know of anyone who has overcome these illnesses? Please be as specific as possible on the different symptoms and range of treatment that you are aware of. Thanking you in Advance!
I have been diagnosed with CFS and Fibromalgia since 1990. This was prior to many people ever hearing of it. Two years before that I was treated by a Rhumatologist for Lupus. He fed me Prednisone for a year and I had to take myself off of them. I went to Vocation Rehab from my work and the couselor had a mother who had what sounded like what I was telling her. She gave me several books to read and I was certain that was what was wrong with me. The problem was the docotors at that time knew nothing about it and did not belive in it. My counselor told me of a new clinic in Charlotte, NC that was treating nothing but my illness. It tooks 9 mos. to get the appointment.
I went to the Hunter-Hopkins Clinic and with extensive testing and thousands of dollars later I had a diagnoses. I remeber crying because for 4 yrs. I thought no one believe in the severe pain and debilitating fatigue I was experiecing It was just a relief to know it was not all in my head. .
Over the years, I have tried about every thearpy and medicine there is for this illness. I tried the hydro-cold water thearpy and it only made my joints and pressure points hurt worse. I got an outdoor jacuzzi tub, only to relalize that the heat was too much for the fatige and it made me weak and I would faint. I also tried, hypnotherpy, acupuncture and every herb and vitamin. Nothing really worked.
My blood pressure went down dangeroulsy low and they did a tilit test on me and I passed out. I was sent to a cardologist to have that check and after extensive tesing he gave me medicine to rasie my blood presssure. However, after 6 months, my blood pressuer was too high and I had to take meds to lower it.
The worst part of all this is the chronic and severe depression I got from being so ill. I no longer take anything other than a my antidepressant, vitamins D, B2 and I take a special formula of B-12 injections. This seems to be helping. The major problem with this illness is that is it an auto-immune problem or dysfunctional immune system. My system make respond to a certain me mediciation for a period of time, but I have to constantly keep changing. My immune system will just stop respondng to them..
There have been those who get over it if they catch it in time but unfortunately I did not. I do believe these are two seperate illneness in the same auto-immune family. But, you can have one without the other. If you pace yourself and do only what your body will allow and do moderate excercise, you can to learn to live with devastating and debilitating illness. Whether it is one or both. I pray you will learn to take it one day at a time and get the rest when your body is warning you. Hang In There, I still believe they are close to finding a real cure!
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March 8th, 2010 . by admin
I have been diagnosed with M.E. or chronic Fatigue and am unable to return to work due to red tape even though I feel much better now (been off since march). Can anyone give me rehab tips?
There are several websites about CFS – Chronic fatigue syndrome, also called ME – myalgic encephalomyelitis. Visit them and see what treatment and rehab tips they have to offer. One key piece of advice is to balance activity with rest.
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March 1st, 2010 . by admin
I’ve suffered with chronic fatigue ever since having a bad case of glandular fever, some years ago. I’ve tried everything, and nothing has really helped. I eat a healthy diet, exercise, sleep well, etc etc. My blood tests are all clear and several physical check-ups have produced normal results also.
Currently I’m trying anti depressants to help with my energy and enthusiasm level, but the three I’ve tried haven’t done much. So am just wondering if anyone out there has come across any other medication that’s helped?
NOTE: please don’t respond by suggesting any so-called ‘natural’ remedies/therapies – I’ve tried them all!!!
Thanks for your help.
It is like this – what goes up comes down at times but when it does it takes a while before it can go up again! Keep doing what you are already doing to recoup and you will soon be back to your healthy feeling sooner than you anticipate! Stop worrying by the way lest you will end up feeling sick again!
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February 22nd, 2010 . by admin
I have had chronic fatigue syndrome (CFS) for ten years now…what are my chances of eventually making a full recovery from this horrid disease?
You may never make a complete recovery from chronic fatigue, but there are ways to help. As well as generally pacing yourself, which is really important, have you considered homeopathy? I worked for a GP who was a qualified homeopath and also held a Chronic Fatigue Syndrome Clinic every week. Do you know of any local hospitals nearby who hold such clinics? We found that homeopathy helped a lot of people and their symptoms. I myself had post viral fatigue for 18 months a few years ago and took the remedy Sepia 30c and within a month, I felt like somebody had recharged my batteries and given me a new lease of life. Of course everybody is different, but if you could consult a registered homeopath, he would be able to find the best remedy for you that would help alleviate your symptoms. Best wishes.
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February 15th, 2010 . by admin
I’ve suffered with chronic fatigue ever since having a bad case of glandular fever, some years ago. I’ve tried everything, and nothing has really helped. I eat a healthy diet, exercise, sleep well, etc etc. My blood tests are all clear and several physical check-ups have produced normal results also.
Currently I’m trying anti depressants to help with my energy and enthusiasm level, but the three I’ve tried haven’t done much. So am just wondering if anyone out there has come across any other medication that’s helped?
NOTE: please don’t respond by suggesting any so-called ‘natural’ remedies/therapies – I’ve tried them all!!!
Thanks for your help.
I take
B-12
B-6
to increase my energy level
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February 12th, 2010 . by admin
My doctor has done every test possible to find out whats wrong with my legs and pelvic. I have had pains,like an achy, heavy , and tired discomfort for a long time…he has done every test possible to rule out everything else. Now he says it could be chronic fatigue syndrome. I have also been diagnosed with depressions years ago and havn’t gotten any better, even with meds. I am tired of feeling this way. Is there any cure?
In major depressive individuals, and bi-polar individuals, muscle pains are actually quite common.
As with chronic fatigue syndrome, it’s quite a possibility that could be the reasons for the pains, as the muscles get tired, they could cause an achy and uncomfortable feeling.
I have chronic depression myself, and also get the same exact pains your talking about. Hope this helps.
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February 3rd, 2010 . by admin
I am doing research into Chronic Fatigue for an assignment.
I would like to hear people’s opinions on the illness:
How would you describe the illness?
Do you think it is a real affliction?
If you have it. What is it like living with it? Describe a typical day.
Please only respond if I am able to quote you in my article
thank you.
would like to hear people’s opinions on the illness:I suffer with chronic fatigue syndrome after having the Epstein Barr virus it takes all my energy and plays havoc on my memory
How would you describe the illness? Describing this illness is the fact Ihang a load of washing out on the line for example and then I can do no more for that day I may have slept 10 hours through the night wake up and an hour later felt as though I havent slept at all I am consistently in conflict with it to keep going through the day
Do you think it is a real affliction?Yes Iam constantly depressed everytime I think Iam getting better I go into a relapse of itand cant wait till night comes so I can go back to bed if you need more questions answered please feel free to E-mail me
If you have it.
What is it like living with it?Living with it is not easy as I also have a newborn baby and the fact my body aches all the time the dizziness I cant do much for her so it effects mywhole life I cant do the things I enjoy most
Describe a typical day.Wake up to feed the baby every 4-5 hours usually get out of bed at 10am as I sleep when the baby sleeps try to do housework like washing the clothes try to get motivated to take the baby in the pram for a walk for exercise also walk the dog last about 10 minutes try to remember bank account pin no.s end up looking up the four digits in my mobile go home and sit in a daze till time to feed the baby and cook dinner then pray for night so I can go to bed having the depression affect my hygiene as some nights I dont feel like getting up to have a shower and when I finally get there washing my hair is the worst after I wash my hair I feel like both arms are dead
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January 9th, 2010 . by admin
I have Chronic Fatigue Syndrome and my doctor doesn’t know anything what to do for it and was wondering if anyone else suffers from this and have any ideas on any prescription medications, herbal medications, or anything else can help with this. Also, what doctor can I go to as regular doctors don’t know what to do for this. Thank you
There are several medications or rather supplements that can help… too many to list here really. I have had ME for 11 years and find EPA Fish oil, magnesium malate with D _Ribose, Tuarine help amongst others. If you need further info then perhaps you can join an online ME group such as ours at http://tomeornottome.yuku.com .. it is a very active group unlike some and there is always someone there to chat to.
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